Results...

We FINALLY got the results today, after waiting for what felt like the longest week of our lives.  :(  Asher's blood test came back revealing that he has NO ALLERGY to milk protein or soy protein.  Honestly, we were kind of disappointed.  I know that sounds weird and wrong, but if it were an allergy, it would have been much simpler to treat and handle, we would at least have a clear direction at where to go from here.  Now that we know it's not an allergy (although he could still have "intolerance" to milk), everything is hazy. 

We are back at square one with the reflux, or worse, because we have been desperately trying to treat the reflux for the last SIX weeks, and NOTHING has worked at all.  We are going back to the hospital to see the pediatric GI specialist tomorrow, and are going in fighting.  Our pediatrician (who we LOVE) highly recommended this GI specialist.  He said that most ped. GI docs are "a little off" and "smart, but very awkward with people".  This woman is very warm and kind, but at our first appointment, she was also very dismissive a tad too patronizing/condescending for my liking.  She kind of shrugged us off and told us what our pediatrician already had... basically all she did was prescribe an additional medication that did nothing.  She said that since Asher has been gaining weight nicely, he is "thriving" and basically we shouldn't over-react and that we might just need to "wait it out" until he grows out of it, which could be when he's 18 months old!  She did more of the trial and error crap (wait longer for the medication to kick in, try a different formula, BLAH BLAH BLAH), so we did that.  We listened to her, and she was wrong, so here we are again. 

Now, we are at least able to go in there saying we did EVERYTHING possible, and nothing has worked, so NOW what?!  We have a test proving there is no allergy, so the next thing to do will be a procedure, probably an upper GI scope.  We intend to go in straight up demanding that she do some sort of procedure to look into what in the world is plaguing our son, and if it's reflux, why isn't anything helping him?  Not that we want Asher to go through invasive procedures, but we need to figure out exactly what is wrong so we know exactly how to help him, because right now, he's suffering terribly.  Last night he was SCREAMING bloody murder for over 4 hours straight, stopping only to gasp for air to scream more.  SOMETHING is wrong.  Something is wrong when your child refuses every bottle at every feeding, screaming, arching, and thrashing because he's afraid to eat, because it hurts him.  SOMETHING is the matter, and we intend to advocate for him until we find out what, so we know what we can best do to help him through it.  Every waking hour he has is spent fighting him to eat at least something... that's not normal, and we are going to find out what is going on.  The gloves are off, people.  I'm going in swinging and don't intend to leave the hospital tomorrow without a better plan than just more "wait and see" trial and error crap. Please pray that we would make some progress and get closer to finding out how to end this misery that our sweet boy is enduring.